Exploring consent as an aesthetic experience through applied theatre with people living with dementia
DOI:
https://doi.org/10.7577/ar.6139Keywords:
consent, dementia, relational ethics, arts-based research, co-creativity, aesthetic analysisAbstract
The process of giving or obtaining consent is typically seen as a series of language-based actions, either documented on a written form or communicated verbally. However, both methods can present challenges when engaging with individuals living with dementia. This paper explores how to understand consent as an aesthetic experience through applied theatre practices.
We draw on data from 12 applied theatre sessions in a residential care home in Northern Norway (2019–2021). The study design was practice led and situated in everyday-life practices at the care home. Through writing field stories collectively, based on a mixture of notes, video recordings, and embodied experiences, we analysed how people gave their consent to engaging in creative activities beyond using spoken and written language.
We find consent in four key elements that play a major role when we work co-creatively with people living with dementia:1) trust; 2) attunement; 3) sensibility; and 4) mutuality. Consent as an aesthetic experience is thus highly embodied, processual, and relational.
Our paper is written within an emerging discourse of relational perspectives in dementia research. It promotes the perception of people living with dementia as creative citizens who can equally contribute to art and research.
Photo: Tomas Rolland
References
Ansdell, G., & Stige, B. (2016). Community Music Therapy. In J. Edwards (Ed.), The Oxford Handbook of Music Therapy (pp. 595-621). https://doi.org/10.1093/oxfordhb/9780199639755.013.6
Anttila, E. (2018). The potential of dance as embodied learning. Body of Knowledge – Embodied Knowledge and the Arts Conference. University of California, Irvine, CA. https://escholarship.org/uc/item/3s7118mr
Artful Dementia Research Lab (2022). Resonating moment: Who can sail without the wind. Zenodo. https://doi.org/10.5281/zenodo.7462736
Artful Dementia Research Lab (2021). How to engage in knowledge creation in ADLab? [Factsheet 1/2021]. https://zenodo.org/record/4638965#.YXejBNZBx_Q
Austin, J. W. (2008). Relational ethics. In L. Given (Ed.), The SAGE Encyclopedia of Qualitative Research Methods (pp. 748–749). Sage. https://doi.org/10.4135/9781412963909
Basting, A. (2020). Creative care: A revolutionary approach to dementia and elder care. HarperOne.
Bogart, A. (2021). The Art of Resonance. Methuen Drama.
Bresler, L. (2006). Toward Connectedness: Aesthetically Based Research. Studies in Art Education, 48(1), 52–69. https://doi.org/10.1080/00393541.2006.11650499
Carter, P. D. (2017). Ethics and research: A situated and relational approach. Psychotherapy and Politics International, 15(3), 1-7. https://doi.org/10.1002/ppi.1429
Charles, A., Loucks, L., Berkes, F., & Armitage, D. (2020). Community science: A typology and its implications for governance of social-ecological systems. Environmental Science & Policy, 106, 77–86. https://doi.org/10.1016/j.envsci.2020.01.019
Dewey, J. (1934). Art as Experience (1st edition). TarcherPerigee.
Eggebø, H. (2020). Collective qualitative analysis. Norsk sosiologisk tidsskrift, 4(02), 106–122. https://nforsk.brage.unit.no/nforsk-xmlui/handle/11250/2724396
Giannachi, G., Kaye, N., & Shanks, M. (Eds.). (2012). Archaeologies of presence: Art, performance and the persistence of being. Routledge.
Gjærum, R. G., Mittner, L., Plucker, E., & Vélasquez, I. T. (2023). Kunstfaglig metodikk og sosial innovasjon i demensomsorgen: Erfaringer fra kunstintervensjon i eldreomsorgen. Nordic Journal of Art & Research, 12(2), 1-26. https://doi.org/10.7577/ar.5097
Hatton, N. (2019). Slowing down: performance in care homes and the practice of attunement. Research in Drama Education: The Journal of Applied Theatre and Performance, 24(1), 96-104. https://doi.org/10.1080/13569783.2018.1535269
Heggstad, K. (2022). When the Unforeseen is the Foreseen. DRAMA, 59(1), 33–39. https://doi.org/10.18261/drama.59.1.9
Juusola, P. O. (2010). Hyperlinking i dokumentasjon: Av digitalbasert bildskapende utviklingsarbeid. https://openarchive.usn.no/usn-xmlui/handle/11250/2438146
Keady, J. D., Campbell, S., Clark, A., Dowlen, R., Elvish, R., Jones, L., Kindell, J., Swarbrick, C., & Williams, S. (2020). Re-thinking and re-positioning “being in the moment” within a continuum of moments: Introducing a new conceptual framework for dementia studies. Ageing & Society, 42(3), 1–22. https://doi.org/10.1017/S0144686X20001014
Kontos, P., Grigorovich, A., Kosurko, A., Bar, R. J., Herron, R. V., Menec, V. H., & Skinner, M. W. (2021). Dancing With Dementia: Exploring the Embodied Dimensions of Creativity and Social Engagement. The Gerontologist, 61(5), 714–723. https://doi.org/10.1093/geront/gnaa129
Krøgholt, I. (2021). Faciliteringens dramaturgi i affektive rum. Journal for Research in Arts and Sports Education 5(2), 73–87. https://doi.org/10.23865/jased.v5.3176
Lepore, M., Shuman, S. B., Wiener, J. M., & Gould, E. (2017). Challenges in involving people with dementia as study participants in research on care and services. RTI International. https://aspe.hhs.gov/basic-report/challenges-involving-people-dementia-study-participants-research-care-and-services
Lotherington, A. T. (2019, January 9). Artful Dementia: Feminist Theory Applied by Ann Therese Lotherington. International Network for Critical Gerontology. https://criticalgerontology.com/artful-dementia/
Lukić, D., & Mittner, L. (2023). Diffracting Dementia: Co-Creative Experiments with Agential Realism and Multisensoriality in a Residential Care Home in Northern Norway. In E. Just, M. Udén, V. Weetzel, & C. Åsberg (Eds.), Voices from Gender Studies: Negotiating the terms of academic production, epistemology, and the logics and contents of identity. (pp. 121–140). Routledge. https://www.routledge.com/Voices-from-Gender-Studies-Negotiating-the-Terms-of-Academic-Production/Just-Udn-Weetzel-sberg/p/book/9781032415826
Merriam-Webster (2023, September 15). Sensibility. https://www.merriam-webster.com/dictionary/sensibility
Mittner, L. & Gjærum R. G. (2022). Research innovation: Advancing arts-based research methods to make sense of micro-moments framed by dementia. Nordic Journal of Art & Research, 11(1), 2–25. https://doi.org/10.7577/information.5065
Mittner, L., & Lotherington, A. T. (2021). Artful Dementia Research Lab: Progress report 2017-2021. (Septentrio Reports 13) Retrieved from https://doi.org/10.7557/7.6399
Mittner, L., Dalby, K., & Gjærum, R. G. (2021). Re-conceptualizing the gap as a potential space of becoming: Exploring aesthetic experiences with people living with dementia. Nordic Journal of Arts, Culture and Health, 3(01–02), 63–74. https://doi.org/10.18261/issn.2535-7913-2021-01-02-06
Mittner, L., & Gürgens, R. G. (2022). Situating an art intervention with people living in a public space: Notes from the field. Nordic Journal of Arts, Culture and Health, 3(1–2), 115–121. https://doi.org/10.18261/issn.2535-7913-2021-01-02-11
Mittner, L. (2021). Resonating moments: Exploring socio-material connectivity through artistic encounters with people living with dementia. Dementia, 21(1), 304-315. https://doi.org/10.1177/14713012211039816
Neelands, J. & Goode, T. (2015). Structuring Drama Work: 100 Key Conventions for Theatre and Drama. Cambridge University Press.
Pink, S. (2013). Doing Visual Ethnography (3rd ed.). Sage.
Plato. (1973). Republic. New York, NY: Anchor Books.
Preston, S. (2016). Applied theatre: Facilitation: Pedagogies, practices, resilience. Bloomsbury.
Rolvsjord, R. (2010). Resource-oriented music therapy in mental health care. Barcelona Publishers Llc.
Ruud, E. (2009). Music Therapy: A Perspective from the Humanities. Barcelona Publishers. http://ebookcentral.proquest.com/lib/tromsoub-ebooks/detail.action?docID=3117626
Stensæth, K. (2005). Action and music therapy: An essay in philosophy of science. In Flerstemmige innspill 2004-2005: En artikkelsamling (pp. 97–122). Norges musikkhøgskole: I samarbeid med Unipub.
Tarawneh, R., & Holtzman, D. M. (2012). The Clinical Problem of Symptomatic Alzheimer Disease and Mild Cognitive Impairment. Cold Spring Harbor Perspectives in Medicine, 14(12), 1-17. (https://doi.org/10.1101/cshperspect.a006148
Upasen, R. (2017). Relational Ethics and Nurses-Client Relationship in Nursing Practice: Literature Review. Mental Health & Human Resilience International Journal, 1(1), 1-9. https://doi.org/10.23880/MHRIJ-16000102
Virta, Olavi (1976). Hopeinen kuu - Garda che luna [Sang]. On Unohtumattomat, Finnlevy.
Wiktionary (2022, September 15). Consent. https://en.wiktionary.org/w/index.php?title=consent&oldid=69941625
Zeilig, H., West, J., & van der Byl Williams, M. (2018). Co-creativity: Possibilities for using the arts with people with a dementia. Quality in Ageing and Older Adults, 19(2), 135–145. https://doi.org/10.1108/QAOA-02-2018-0008
Østern, T. P. & Hovik, L. (2017). Med-koreografi og med-dramaturgi som diffraksjon: Journal for Research in Arts and Sports Education, 1(5), 43-58. https://doi.org/10.23865/jased.v1.906
Østern, T. P., Jusslin, S., Nødtvedt Knudsen, K., Maapalo, P. & Bjørkøy, I. (2021). A performative paradigm for post-qualitative inquiry. Qualitative Research, 23(2), 272-289. https://doi.org/10.1177/14687941211027444
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